Challenges in Addressing Clinical and Psychosocial Issues in Young Adults with Hemophilia

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Release Date: October 10, 2017
Expiration Date: October 10, 2018
Estimated Time to Complete Activity: 60 minutes
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Target Audience
This activity has been designed to meet the educational needs of hematologists, hematologist/oncologists, pediatricians, registered nurses, social workers and hemophilia treatment center (HTC) staff, registered with the Blood CME Center™, who are involved in the comprehensive care of people with hemophilia (PWH).

Statement of Need/Program Overview
Psychosocial factors have a significant impact on the quality of life for patients with chronic diseases such as hemophilia. Interventions to support the psychosocial needs of patients and their families, such as offering information and assistance, clarifying doubts, and teaching coping strategies to identify and address individual barriers, improve adherence, prevent joint damage, be more cost-effective, and lead to better overall health.

1. Healthcare professionals (HCPs) need to be aware that the ways that PWH cope with the challenges of living with hemophilia are influenced by their specific environment and by their emotional, mental, and physical states

2. HCPs need to know that understanding the psychosocial aspects of hemophilia is an important step for identifying the best approaches to provide appropriate support to PWH and their families and to promote integration into society to prevent isolation

3. HCPs need to cooperate with psychosocial specialists and other members of the HTC team to address the psychosocial burden of hemophilia by developing a network of psychological support services and promoting specific educational programs for PWH

Educational Objectives
After participating in this activity, participants should be able to:

  • Evaluate current data and expert opinion on the psychosocial aspects of hemophilia
  • Develop tailored psycho-education that provides knowledge, self-management guidance, and coping strategies
  • Discuss appropriate treatment regimens that consider and incorporate psychosocial aspects of quality of life (QoL) for PWH
  • Implement appropriate intervention strategies to address psychosocial needs to maximize outcomes and improve QoL of PWH and their families

Presenting Faculty

Michael Recht, MD, PhD
Michael M. Recht, MD, PhD – Chair
Professor of Pediatrics and Medicine
Director, The Hemophilia Center
Oregon Health & Science University
Portland, Oregon

 

Kyme Groller, RN
Kyme Groller, RN
Nurse Coordinator, RN
Bleeding Disorder Center of Alaska
Anchorage, Alaska

 

Yleana Hughes
Yleana Hughes
Director of Client Services
Arizona Hemophilia Association
Phoenix, Arizona

Physician Continuing Medical Education
Accreditation Statement
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Postgraduate Institute for Medicine, the Cardiovascular & Metabolic Health Foundation, and Educational Concepts in Medicine. The Postgraduate Institute for Medicine is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation
Postgraduate Institute for Medicine designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nursing Continuing Education
Accreditation Statement
Postgraduate Institute for Medicine is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.
 

Credit Designation
This educational activity for 1.0 contact hours is provided by Postgraduate Institute for Medicine

Social Worker Continuing Education
This activity is pending approval from the National Association of Social Workers

Instructions to Receive Credit
During the period of October 10, 2017, through October 10, 2018, participants must:

  • Read the learning objectives and faculty disclosures
  • Study the educational activity
  • Complete the posttest by recording the best answer to each question
  • Complete the evaluation form

A statement of credit will be issued automatically upon successful completion of the post-activity survey with a score of 80% or better and submission of the activity evaluation.

Fee Information & Refund/Cancellation Policy
There is no fee for this educational activity.

Disclosure of Conflicts of Interest
Postgraduate Institute for Medicine (PIM) requires instructors, planners, managers, and other individuals who are in a position to control the content of this activity to disclose any real or apparent conflict of interest (COI) they may have as related to the content of this activity. All identified COI are thoroughly vetted and resolved according to PIM policy. PIM is committed to providing its learners with high-quality CME activities and related materials that promote improvements or quality in healthcare and not a specific proprietary business interest of a commercial interest.

The faculty reported the following financial relationships or relationships to products or devices they or their spouse/life partner have with commercial interests related to the content of this CME activity:

Name of Faculty Presenter/Planning Committee Reported Financial Relationship
Michael M. Recht, MD, PhD Institutional research support: Baxalta, Bioverativ, Genentech, NovoNordisk; Consulting/Advisory boards: Baxalta, Bioverativ, CSL Behring, Genentech, Kedrion, NovoNordisk, Pfizer, uniQure

Kyme Groller, RN

Has no real or apparent conflicts of interest to report
Yleana Hughes Has no real or apparent conflicts of interest to report
The planners and managers reported the following financial relationships or relationships to products or devices they or their spouse/life partner have with commercial interests related to the content of this CME activity:
Name of Planner or Manager Reported Financial Relationship
PIM Clinical Reviewers: Trace Hutchison, PharmD; Samantha Mattiucci, PharmD, CHCP; Judi Smelker-Mitchek, RN, BSN; Jan Schultz, RN, MSN, CHCP

Have no real or apparent conflicts of interest to report.

ECM: Patrick J. Crowley, MBA, Partner/CEO; Jodi Andrews, BS, Partner/COO; Jo-Ann Angelucci, BA, Program Director; Larry Rosenberg, PhD, Medical Writer Have no real or apparent conflicts of interest to report.

Disclosure of Unlabeled Use
This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the US Food and Drug Administration (FDA). PIM and Educational Concepts in Medicine do not recommend the use of any agent outside of the labeled indications.

The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of any organization associated with this activity. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.

Disclaimer
Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed in this activity should not be used by clinicians without evaluation of patient conditions and possible contraindications on dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.

Support
This activity is supported by an educaitonal grant from Novo Nordisk

Fee Information
There is no fee for this educational activity.